Thursday, May 12, 2011

My Other Special Snowflake

Tumbleweed's biopsy came back.........

(spots at their worst)

Positive is actually good.  Because if I didn't know what was going on with her, I think I'd go crazy.  Well, crazier.

She has a condition called urticaria pigmentosa, (here's the wiki) and yeah, it's another "rare disease".
 (non-reacting spots)

Just like her sister's disease, she'll outgrow it and the blood tests showed that it's only in the skin so she'll be fine.  We can just plan on allergy issues with her.
And we can't get bee's now. :(  A lot of kids with this are really allergic to insect venom.

So there you have it.  A kid with PFAPA, one with UP, and the other....well, he's just a special snowflake anyway :)


  1. Well, I'm glad you got some answers on what's going on. Wow. Poor kid! Poor mom! And, too bad about no bees. :(

  2. WOW!!! You guys have some crazy stuff!! So glad you got answers though.

  3. yeah, my babies don't come out fully cooked or something....