I got tired of her stealing diapers so I made her some of her very own "cloth diapers" out of fleece. SO EASY and a huge hit!! Her brother gave her a feather boa, also a huge hit.
This next part is more for family and friends who have been wondering about Munchkin's illness. We went to see her pediatrician this week who gave her a working diagnosis of
PFAPA, which stands for Periodic Fever, Apthous stomatitis, Pharyngitis and Adenitis. There are no tests yet to confirm it, we just have to rule out
other diseases in the periodic fever family (she had blood/urine tests to rule out other diseases). What this means is she gets really high fevers (like 105) every month or so which last for a few days. She does get canker sores (that's what apthous stomatits is), but I don't know if they're related to her fevers or not. She doesn't have it as severe as some of the kids I've read about so I'm still not sure if this is really it, but for now it seems to fit the best. Some of those kids get really enlarged lymph nodes and really bad sore throats and their fevers last all week.
We don't have a lot of info and I hope the specialist we see next month will have more answers but I'm not too optimistic. It's listed on the National Institute of Health's Office of Rare Diseases so they just don't know a lot yet. But NIH is currently doing studies and I'm hopeful about that.
The specialists may want to do genetic testing to rule out other periodic fevers, but since she doesn't have any of the associated symptoms I'm not sure. Right now it's wait and see. The good news is that this is simply an inconvenient disease with no known long term effects that she'll most likely outgrow. Either that or we'll get her tonsils removed since it has been shown to be effective treatment. I'm leery of that though since she doesn't get sore throats with it.
The rest of us had leftover valentine cookies and she still got to blow out her candles. And those cupcakes are amazing! She couldn't finish it so I had a bite. I never knew a cupcake could taste like that!
This next part is more for family and friends who have been wondering about Munchkin's illness. We went to see her pediatrician this week who gave her a working diagnosis of PFAPA, which stands for Periodic Fever, Apthous stomatitis, Pharyngitis and Adenitis. There are no tests yet to confirm it, we just have to rule out other diseases in the periodic fever family (she had blood/urine tests to rule out other diseases). What this means is she gets really high fevers (like 105) every month or so which last for a few days. She does get canker sores (that's what apthous stomatits is), but I don't know if they're related to her fevers or not. She doesn't have it as severe as some of the kids I've read about so I'm still not sure if this is really it, but for now it seems to fit the best. Some of those kids get really enlarged lymph nodes and really bad sore throats and their fevers last all week.